Your experience belongs in the future of research.
Living with Kernicterus is about a whole life—not just a diagnosis. We want future research priorities to reflect what people affected by Kernicterus value.
Care today
Discuss individual needs with your healthcare team. Symptom management, rehabilitation, communication support, and hearing-related care may help people participate in daily life. These supports are distinct from a cure.
Research tomorrow
cureKI is forming to focus on treatments and a future cure. There are no cureKI clinical trials, patient registries, or study enrollment opportunities at this time.
A separate resource: PIC-K
PIC-K focuses on prevention, awareness, and family support. cureKI’s intended focus is treatment research for established injury. We are separate organizations; linking to PIC-K does not imply a partnership.
Your privacy matters
Please do not send health records or personal medical information. We will need appropriate privacy and consent practices before inviting research participation or collecting health information.